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| The following survey was recently posted on our home page. These are the results, based on your responses. The UCLA Behavioral-Genetics Clinic is conducting additional research along these lines. If you would like to participate in the research, please see the information provided below. Thank you. Is your school doing the right things for your child? Strongly
Agree Slightly
Agree Neither
Agree/Disagree
Slightly
Disagree Strongly
Disagree
RESEARCH ON EDUCATIONAL ISSUES: Students with Prader-Willi , Williams, Down or Fragile-X Syndromes for school children ages 3-14 in the US
The UCLA Behavioral-Genetics Clinic along with the UCLA Lili Claire Family Resource Center is conducting a needs assessment of teachers and parents of children with specific genetic disorders. We are seeking your participation in answering our research questionnaire about your child's educational strengths and limitations, behavior concerns, and the degree to which your child's school program is tailored to his/her specific needs. The questionnaire should take no more than 30-40 minutes to complete.
For more information or to participate in the study, please contact: Rebecca Cox, Ph.D. Technical Support Coordinator Rm. 58-218E 760 Westwood Blvd. Los Angeles, CA 90024 Or call 310-794-9516 (Lili Claire Family Resource Center) Or contact us by email at GENESTUDY@mednet.ucla.edu Principal Investigator-Bhavik Shah, M.D., UCLA Department of Psychiatry UCLA IRB# G03-01-073-03 Expiration Date: October 26, 2006 |
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Please send mail to williamssyndrome@insightbb.com with questions or comments about this web site.For additional information about Williams syndrome, please send an e-mail to hlenhoff@uci.edu.For contact with other Williams syndrome families --In the USA: please send e-mail to info@williams-syndrome.orgOutside the USA:
please visit our
International Williams Syndrome Support Groups page for
contact information.
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