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| October 16, 2005Naomi’s Corset (co-presented by the Disability Network of New York City)A Williams syndrome movie-- set to participate in the Margaret Mead Film Festival in New York City at 8:00 PM November 5, 2005In the movie Naomi talks about herself and her experiences . It is a very beautiful movie and Naomi is very proud of it. The movie passed on Israeli TV and was selected in several festivals in Israel and Europe. In France, at the FIPA in Biaritz, it received a special mention from the jury. We think that this movie can interest you and you may-be know other people or organizations, who could be interested. We think it is an important movie and that it contributes to the understanding and the great possibilities of our WS children. --Henriette Allon, Director Williams Syndrome Israel
SynopsisAt age ten, Naomi faces one of the most trying times in her life. As a result of severe scoliosis (spine curvature), she is forced to wear a stiff orthopedic corset 23 hours a day. Diagnosed at infancy with Williams Syndrome, a rare genetic disorder, Naomi is especially sensitive to extreme emotional and physical situations. Facing the audience she expresses her thoughts candidly; ‘The worst thing is the corset; so, watch out doctors, I can be very tough with you…’ Naomi and her father Gérard, an accomplished artist, decided to make a film about the corset with the hope of alleviating her anxieties. For over two years the camera follows Naomi: she shares her innermost feelings, poses and dances, studies, travels and finally enters into the operating theater where she undergoes an extensive spine surgery. Naomi’s Corset combines day to day documentation, stills, X rays and true accounts of medical procedures, juxtaposing “cinéma vérité” and “video art”. This complex and provocative filmmaking transforms a father-daughter relationship from the private to the public sphere.
August 13, 2005Special Olympics is releasing research on the barriers
to health care for people with intellectual disabilities.
The research clearly shows that dentists and doctors are
not providing access to health care for people with
intellectual disabilities and people with intellectual
disabilities have some the worst health care of any
minority population. |
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Please send mail to williamssyndrome@insightbb.com with questions or comments about this web site.For additional information about Williams syndrome, please send an e-mail to hlenhoff@uci.edu.For contact with other Williams syndrome families --In the USA: please send e-mail to info@williams-syndrome.orgOutside the USA:
please visit our
International Williams Syndrome Support Groups page for
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