She has trouble with seemingly simple tasks, like crossing a street, but she can sing
in 30 languages with perfect pitch.
The syndrome that robbed her of much has given her much: musical talents that have
brightened her world.
Gloria Lenhoff, 48, is in Shawnee
recording a CD with Sandra Meyer, associate professor of music at Oklahoma Baptist
University. Lenhoff has Williams Syndrome, a condition that produces physical and
cognitive abnormalities. But unique to the syndrome is an aptitude for music -- in
Gloria's case, expertise that few people without the condition have attained.
"We see miracles almost every day," Dr. Howard Lenhoff, Gloria's father, said
during a presentation at OBU Tuesday night. "There are peaks and valleys. The peaks
are phenomenal."
Gloria will be in recital at Yarborough Auditorium in OBU's Raley Chapel at 7:30 p.m.
today. The event is free and open to the public. She will sing pieces by Handel, Strauss,
Verdi, Puccini and Mozart, as well as some spirituals and music in the languages of
Arabic, Hindu, Japanese and French.
Gloria has more than 2,000 songs in her repertoire, her father said, but she has an IQ
of 55 and reads at a fifth-grade level. It is part of the irony of Williams Syndrome, a
condition that affects motor coordination, facial features, attention spans,
visual-spatial abilities and intellect. Research has shown that all with Williams Syndrome
have leanings toward music -- many with their voice, some on piano, drums and wind
instruments, Lenhoff said. Few play stringed instruments because of their difficulty with
motor skills, he said.
Gloria was born before Williams Syndrome was diagnosed, her father said. Their family
experienced the difficulties that come with having a handicapped child, but without a name
for the problem.
In 1961, Williams Syndrome was identified by New Zealand doctors. Several other
diagnoses were made that year, and many similarities were discovered, Lenhoff said. All
had heart problems, from simple murmurs to complex issues. They had high amounts of
calcium in their bodies and shared what was described as an "elfin face look:"
broad forehead, wide mouth, full lips, small chin, puffiness around the eyes and a small,
upturned nose.
Other physical problems included joint limitations, abnormal walking, premature graying
and an inability to handle food. Ninety-five percent had hyperacusis, in which sounds are
painfully loud.
But there are many positive characteristics to Williams Syndrome people, Lenhoff said.
They are friendly and talkative, have good long-term memories and are empathetic. Gloria
is particularly at home performing in nursing homes because she seems to identify with
people there, her father said.
One out of 20,000 people is born with Williams Syndrome, Lenhoff said. Cause of the
condition has been traced to the No. 7 chromosome that is missing about 20 genes. Those
genes produce elastin, a protein helps build heart muscles, lungs and intestines, he said.
Gloria showed an unusual knack for music as a child, but her parents initially thought
it was part of a youngster's curiosity, Lenhoff said. The extent of her ability became
apparent at age 13 when she participated in her bat mitzvah, her mother Sylvia Lenhoff
said. Because of Gloria's condition, they wanted to keep the ceremony low-key. Someone
taught her a short song to sing, and they held their breath.
"When she sang it, everyone was speechless," Sylvia Lenhoff said. "It
was perfect. From then on, we knew we had to give her the best training possible."
Since then, Gloria has had weekly music lessons. She has a gift, her father said, but
she also has worked hard at it, something that sharpens any musician's skills. It was
difficult to find teachers willing to adjust their approaches, and their patience, he
said. Gloria has been coached by a physical therapist, a prison teacher, college music
majors and others.
Gloria has learned many of her songs by listening to a recording or taping her lessons.
That technique has been used to learn how to sing in other languages, Lenhoff said. They
ask native singers to record a song, then enunciate each phrase, leaving a blank space in
time for Gloria to repeat. They sing the song again at the end of the tape.
"She's learned some songs in 30 minutes, and others have taken her a few
days," he said.
Along the way, the Lenhoffs discovered that Gloria has absolute pitch, the ability to
identify and/or produce notes without reference to other notes. Only one in 10,000 people
in the general population has the ability, he said.
Gloria also plays the accordion, using three fingers on the keyboard because she cannot
turn her arm enough to use all five.
Gloria has performed all over the world, from opera houses to the Grand Ole Opry to the
Kennedy Center. She met OBU professor Meyer at a music camp for those with Williams
Syndrome. Meyer has a niece with the condition and has taught at camps in Boston and
Ireland. Their album features sacred music, a sort of "classical karaoke" with
the accompaniment available on a separate track, Meyer said.
Through her work with Williams Syndrome, Meyer said she has seen people's joy at
embracing a skill shining through deficiencies.
"People at the camps blossom and gain confidence," she said. "They are
so supportive of each other and have such big hearts, without exception. It's a wonderful
experience."