This is Amadi in
the Summer of 2003, aged 4 1/2. 
Amadi was born on
Sunday, 1 Nov 1998 at Hammersmith Hospital in London by
emergency caesarian when it was clear that I was not
"progressing" and she was in some distress.
Although long, Amadi was incredibly slight and it did seem
as though her skin was too big for her. Apart from some
breathing difficulties (the nurses had to take her away to
'evacuate' her nasal passage, all seemed to be well
although Amadi did not really open her eyes for the longest
while.
When she was 6 weeks old (a day after her face was lit up
by a beaming smile - no, it WAS NOT wind), she was rushed
to hospital due to swelling of her hands, and later feet.
To this day, the medical professionals cannot tell me what
the reason was for this, but I know it was down to lactose
intolerance - I had given her some formula because she did
not seem to have enough of my breast milk (mainly because
of the projectile vomiting).
Although Amadi is my first and only child, it was clear to
me that something was not quite right. At 15 months a
heart murmur was established. She was 2 1/2 before WS was
even considered. I did my own research and realized with
some relief (and plenty of emotional turmoil) that Amadi
was a Williams kid.
Amadi is now almost 5 years old and has just started
mainstream schooling with support and she absolutely loves
it. I don't care whether she is academically gifted or not
- she is mixing with her peers and that is what matters to
me.
