Brady was born 10/13/05.
He
weighed 7 lbs. 7 oz and
measured 19 inches. He was born via scheduled Cesarean
section. He was clinically diagnosed with WS when he was
one month old due to his heart problems, then confirmed
a few months later with the FISH test.
He
weighed 7 lbs. 7 oz and
measured 19 inches. He was born via scheduled Cesarean
section. He was clinically diagnosed with WS when he was
one month old due to his heart problems, then confirmed
a few months later with the FISH test.
Here's the clinical part: at birth,
the doctors detected a heart murmur. It turned out he
had two VSDs --they are so tiny and so common, they will
more than likely close on their own. He also has
Pulmonary Stenosis and Supravalvular Aortic Stenosis.
When he was two months old he had surgery for
an inguinal bilateral hernia. Since then he has also
been diagnosed with radioulnar synostosis (two bones in
the forearm are fused together), strabismus (he will
wear glasses to help align his eyes through childhood),
and feeding problems. He is taking Prevacid for silent
reflux. He has occupational therapy, physical therapy
and speech therapy all for developmental delays. He
didn't smile until he was 14 months old, and only does
sporadically, although he is very aware of his
surroundings and alert.
Here's the reality part: Brady is
adorable and everyone falls in love with him wherever we
go. He constantly watches his 8-year-old brother and is
always checking everything out. He has touched our lives
in so many ways, as well as everyone he meets. He will
be a big jokester, I can tell, because he acts asleep
for his therapists and as soon as they stop working him
he opens his eyes and hangs out again - one therapist
calls it "playing possum"! His personality is starting
to really shine through and I am excited to see him
start to blossom. He is indeed the light in our lives.
