This is Caleb. He
is 9 years old and has just been diagnosed with Ws.
For
all of these years, we didn't know what it was.
He was born with a single umbilical artery and
I.U.G.R. He was very, very, very colicky.
He was a very anxious baby who was disturbed by loud
noises. He was late to walk, talk, laugh, and all the
other typical milestones. He always had a strong connection with music though. Even as an infant, music would be the only thing that would console him. He loves to sing. Even with his rough, scratchy voice, he is always the loudest singer and proud of it! He has been in specialized classes since he's been 4 yrs. old. He is currently in a life-skills support class in a regular school. He loves school. Caleb loves being around people, and has a lot of hugs to give. He always has a "Hi, how are you doing?" for everyone he meets along the way. He is very active and rarely sits still, except for a good song or his favorite show on TV (monster trucks). Even then he is rocking. Rocking is very comforting to him. He has a short temper, and he also has the gift of gab. He has been healthy. I guess that is why it has gone undetected so far. He does have a heart murmur which will be checked out. He has a brother and a sister who are both great with him. They would love to talk to other brothers and sisters of Ws kids. We have always thought there was no other person in the world like him. Boy were we wrong! I would love to hear from other families that understand. Heather Flaharty (Caleb's mom) flah72@netzero.net |
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Please send mail to williamssyndrome@insightbb.com with questions or comments about this web site.For additional information about Williams syndrome, please send an e-mail to hlenhoff@uci.edu.For contact with other Williams syndrome families --In the USA: please send e-mail to info@williams-syndrome.orgOutside the USA:
please visit our
International Williams Syndrome Support Groups page for
contact information.
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