Hello,
This is our son Daniel Alexander (ZAN). He was born February 14, 1993. He was diagnosed with Williams Syndrome in March of 1994 by his cardiologist.
He had open heart surgery at 18 mos. to repair aortic
stenosis and had surgery again in November 2006.
He was in ICU for a total of 73 hours and then sent
home!Daniel is doing okay. We have just been told that he has "a bit of regurgitation" at his last check up and he will be closely monitored. During his last surgery, his older brother started a "myspace" page to keep our family updated and, to our surprise, we received numerous friend requests from family & friends of children with Williams. If you have a myspace page, feel free to add us -- www.myspace.com/williams_syndrome.
Daniel will be
starting 9th grade in the fall. He loves music
and Disney movies, & Bruce Campbell. He is the 2nd
oldest and has 5 siblings -- 2 brothers & 3 sisters.
He lives in Texas with Mom & Dad, who would love to
hear from other parents!
E-mail us at melissamom2_6@yahoo.com. |
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Please send mail to williamssyndrome@insightbb.com with questions or comments about this web site.For additional information about Williams syndrome, please send an e-mail to hlenhoff@uci.edu.For contact with other Williams syndrome families --In the USA: please send e-mail to info@williams-syndrome.orgOutside the USA:
please visit our
International Williams Syndrome Support Groups page for
contact information.
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