Huge
greetings from
Russia
to our friends!
I
correspond with parents of children with SW (280 - 300
person from the different countries and continents). It is
very interesting, but very complex - necessary to all to
translate the letter on other language, and my electronic
translator sometimes translates phrases well, and it is
sometimes bad. Therefore in advance I ask a pardon if the
letter is badly translated.
To me 37 years, Kira 31 years (my wife), Gleb 9
(11,12,1998) 
Gleb was born in
time, but to the wife did section as at a fruit lack of
oxygen (he/she is the first child) .Growth 48 sm was,
weight 2700 (small) .? him at a birth at once have defined
a heart disease (as by the way at you - usually at this
syndrome at children any problems with heart?). We have
bypassed all central centers and hospitals with this
problem and registered in ??????????? the
Cardiological
Center
(there weight of professors and everyone put the diagnosis
and operation to do were not solved. But to us simply CARRY
the main children's cardiologist of
Moscow has suggested to
perform operation in the
republic of
South Africa
(in clinic of the professor. Barnard). He/she is the
well-known person - Nobel prize winner (the first has made
change of artificial heart)-р him huge world-wide ????????
clinic in Capetown. There do one of the best operations on
heart, children's. Once a year (the program) they take any
child from them from any the country and perform operation
here in 2002 on turn there was
Russia
and to us have suggested to go because someone has refused.
We a little having thought agree - ???-??? have understood
that at us in the country we are necessary for nobody with.
And here this grandfather (the professor to Barnard-it
already was years 75) has arrived for us in
Moscow-has taken mine (the
wife and the child and they have departed to
Southern Africa. Have met
them there perfectly, showed on the TV and wrote almost in
all newspapers (at us many newspapers with clauses about
Gleb).. In streets (after operation when they walked to
them simple people approached and all congratulated on
successful operation. The wife has got acquainted with
family from
Namibia,
to them performed operation to the child (they Dutchs but
live in
Namibia).
To it was 0,5 month-have made also perfectly-we now with
them we are called back. Having arrived in
Moscow we from
news have learned that professor Barnard the die-wife with
the grandmother 2 days cry-but we shall remember this
person always-it has given Gleby the second life as against
our doctors. Now at Gleb with heart everything is all
right. We sent blood for examination in Austria-and to us
have sent results and have confirmed that at us Williams's
this syndrome (this rather rare disease) and anybody in a
sort did not have problems and in Russia to us it put-only
leaning on appearance of the child. Growth Gleb 140 (rather
high) - weight 24.5 (Thin ) eats enough ???? bad-fruit in
general any not is-very much loves all dairy and black
bread eats itself (rather accurately) itself coordination
of movement puts on and undresses is rather weak. Speaks
(only words-offers practically much does not make) well
knows colors and is able to consider up to 1000, very much
loves music and cartoon films. Very tender, indulged (ours
all allow-not abused) and artfully-now is begun to abuse on
the sly if does not listen. Necessarily write, and come on
a visit better Excuse work I shall be released still
many-as shall communicate And it again my miracle. Once
again excuse for English. Huge greetings from
Moscow.
Necessarily write-we very much we wait. Very much all is
interesting to us. Write - we shall correspond, and to
share our victories above Sindrom Williamsa.
Our embraces and kisses for
all your
.
Here my
e-mail - Sergey@buro.ru
- we will communicate with the great pleasure with all who
to us will write.
Sergey,
Kira, Glebby
