Hi my name is Janae 
and I am 2 yrs. old. I live in Littleton
Colorado.
Janae was diagnosed with Williams Syndrome at the age of 6
weeks old. Janae has already had one open heart
surgery to fix her supravalvular aortic stenosis when she was
about 15 months old. Now is being monitored due to some
narrowing again. She has high blood pressure which is
currently her biggest issue right now.
Janae is a very picky eater and has trouble gaining and
maintaining her weight. Janae is currently receiving
PT, OT and Speech in my home, and hopefully soon will be
starting music therapy as well.
Janae is a very happy and loveable little girl, who always
has a smile on her face and can brighten up anyone's day.
Janae loves to observe people and watch everything you do.
There is not a place I don't go that she doesn't
catch someone's attention. Janae's favorite
things are kitties, her telephone, and anything musical.
As a 19 yr. old mom, it was very hard to find out that your
little girl has a genetic disorder. Not knowing
what Williams Syndrome was, I had to refocus on many
issues Janae would have, like having doctor
appointments that would be as simple as a blood pressure
check turn into a 3 hour appointment, which then turns into
days and weeks at the the doctors. It can become very
overwhelming at times, not only for me, but for Janae as
well. But by the grace of God and the support and
help from my mom, I seem to get through it ok. With the
life journey ahead and with Janae, there is so much more to
learn and enjoy.
I would love to hear or meet with families of loved ones
with WS in the Denver metro area.
My email address:
Dizzy_desi05@msn.com.
