Kendal

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This is Kendal Rae Cassandra Serre.  She was born on July 25, 2004.  Our first year with Kendal was a challenge.  She cried often and had difficulty sleeping and feeding.  Kendal could only drink small quantities of formula at a time and therefore wanted her bottle every 1 ½ hours – even through the night.  Once she reached 8 months I started to worry because she wasn’t sitting up yet, and had no interest in solid foods. In fact, she would start to cry whenever I tried to feed her anything and push it away.  At nine months she was diagnosed as Failure to Thrive and hospitalized.  After a lot of testing at our local hospital, they were still unable to determine what the problem was and we were transferred to Sick Kids Hospital in Toronto.  The Genetics team quickly suspected she had Williams Syndrome based on her facial features, delays and medical problems.  This was confirmed by the FISH Test.  Our initial shock of the news quickly turned to relief because now we knew what the problem was so that we could help her.  Kendal has hypercalcemia which we are now hoping her body is starting to regulate and she is sensitive to sounds and touch.  We have regular appointments to monitor her heart, kidneys, eyes and calcium levels.  So far there have been no serious problems other than the elevated calcium.  Kendal is now approaching her 2nd birthday. While she is be a bit slow reaching milestones, Kendal is a very determined girl and she does reach all the milestones when she’s ready to.  Kendal is doing great with the help of her Infant Development Worker, Feeding, OT, PT and Speech Therapy.  She is starting to walk and is now eating AND CHEWING regular food.  Kendal loves spicy food, pizza, pasta, and anything with garlic.  She does not like any fruits or vegetables yet.  Kendal is a joy.  Any temper tantrums are quickly forgotten when she’s redirected to something she enjoys.  She always has a smile on her face and a twinkle in her beautiful blue eyes.  Her first word was Hi followed closely by Hello and she says it to everyone she sees when we go out.  She loves her dogs Woody and Nikki, her pet rabbit Toby and her TV - especially the Baby Einstein DVD’s, the Wiggles, Barney and Teletubbies.  Kendal has a lot of energy, sometimes going from 8:00 in the morning to 9:30 or 10 at night, solid.  I call her my little energizer bunny but at least she’s sleeping through the night now.  Her dad, big sister Stephanie and I love her very much.  It doesn’t matter to us that she has Williams Syndrome because watching her laugh, enjoy life and grow always puts a smile on our face.  Kendal lives with her mom and dad, in Ontario Canada.  Kendal's sister Stephanie is an adult with a home of her own, but she loves showing her precious little sister off to her friends and colleagues whenever she can.  Her mom would be happy to talk with parents of other Williams kids and can be contacted at kimberly.serre@sympatico.ca.

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Last modified: April 15, 2007