Maddox was recently diagnosed with WS. He was born on 12/13/06 two weeks early. He only weighed 4 lbs. 15 oz. which was expected due to the many ultrasounds we had. He was slow to gain weight @ first but isn't having to many problems now, he is still small @ 14lbs. but catching up quickly. He was diagnosed with moderate pulmonary stenosis and mild aortic steno sis after his pediatrician heard a murmur. This is just being monitored @ this time, but will require ballooning @ some time. He is still waiting to see the ophthalmologist. Other than these few set backs he is doing very well. Maddox is one of the happiest babies I have ever seen. He absolutely loves his big sister McKenzie, age 5. We are very thankful that this seems to be mild @ this time, but we  are still relatively new @ this whole thing and still going through a whole string of emotions. We are getting ready to start some therapies with Maddox, and pray that the early intervention will be of great help. He is the light of our lives and although things aren't what we expected we are truly blessed in our lives. We would love to hear from other parents as we are new to this.

 

Amber(mom)

Randall(dad)

McKenzie(sister)