Tobi

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Tobi was born on June 8, 2001, one week after his due date.  He weighed 6 lbs. 6 ½ oz.  Tobi was diagnosed with Pulmonary Stenosis at 2 days old, although no surgical intervention was ever needed.  He was a very colicky baby until 5 months old.  At 5 months old, it was like somebody turned a switch and he became the happiest child. 

Tobi was not diagnosed with Williams Syndrome until he was almost 3 years old.  His cardiologist made the recommendation to see a geneticist based on his heart condition, physical features, and developmental delays.  We received the positive FISH test results in April of 2004. 

Tobi was 3 ½ at the time that this picture was taken.  Tobi is a very happy little boy and brings a smile to everyone that he meets.  He attends school five days a week and loves to ride the bus.  His favorite toys are his cars and trucks.  He and his 5 ½ year old brother Devin are great friends and they both bring such joy to our lives.

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For additional information about Williams syndrome, please send an e-mail to hlenhoff@uci.edu.
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Copyright © 2002 Williams Syndrome Foundation
Last modified: April 15, 2007