Zion
was finally diagnosed with William's Syndrome only about
a month ago and the concept of having a special needs
child is really something to get used to. He was
labeled as 'failure to thrive' and has always had slow
weight gain. People were always making comments and
asking if he was premature. He was born with a slight heart murmur, but it wasn't detected again until recently, which ultimately led to his diagnosis. Early on, he was screened for quite a few different disorders, including Cystic Fibrosis (even though we were screened via amnio during pregnancy). He also had surgery for bi-lateral inguinal hernia and hydroceles at 22 weeks. He has reactive airway syndrome and has been hospitalized a few times during winter months. He now has been diagnosed with a narrowing of the aorta. I am terrified that he may need corrective surgery.
His development has been slow but he has finally started walking, and its such a heart warming sight to see him waddle into a room!!! He eats EVERYTHING...actually it's a habit we are trying to 'break' because he follows anyone with food! He is so sweet and everyone has always loved him so because of his tender, easygoing and friendly personality.
He loves his toys that make noise and light up and of course, the ones that play music. His new interest is wheels on his big brother's hot wheels cars. He loves to spin them and watch them move.
Please feel free to contact me to network and compare our experiences at lisses03@yahoo.com!!
