Support Organizations - International

Table of Contents

Argentina

• Asociación Argentina de Síndrome de Williams (aAsW)

Australia

• Williams Syndrome Support Group of Victoria
• Williams Syndrome Association of South Australia, Inc.
• Williams Syndrome (IHC) Association of New South Wales

Belgium

• Williams Syndrome Association of Belgium (French speaking)
• vzw Williams-Beuren syndroom (Flemish speaking)

Canada

• The Canadian Association for Williams Syndrome (CAWS)

Denmark

• Danish Association for Williams Syndrome

Finland

• Williams Syndrome Association of Finland

France

• French Federation of Williams syndrome
• Williams-France/EST
• Le syndrome de Williams et Beuren (en Francaís)
• Association Autour des Williams

Germany

• Bundesverband William-Beuren Syndrom
• Horst Romm's Williams-Beuren Syndrome Home Page
• Die Regionalgruppe in Bayern
• Die Böhmländers im Internet. Ein Kind mit WBS erobert die Welt

Hungary

• Magyar Williams Szindróma Társaság

Ireland

• Williams Syndrome Association of Ireland (WSAI)

Israel

• Williams Syndrome of Israel

Italy

• Associazione Italiana Sindrome di Williams (ASW)

Japan

• Williams Syndrome Association of Japan

New Zealand

• Williams Syndrome Association

Norway

• Norsk Forening for WS

Republic of South Africa

• Williams Syndrome Association of South Africa

Romania

• Williams Syndrome Association of Romania

RUSSIA

• Williams Syndrome Association of Russia (in Russian)

Spain

• Asociación Sindrome de Williams (A.S.W.)

Sweden

• Williams Syndrome of Sweden

UK

• Williams Syndrome Foundation, LTD

If you know of any other Williams syndrome support organizations please email me with all the details.

The following link, from the WSF-UK, may contain contact information for Williams Syndrome Federations & Associations not listed here: http://www.williams-syndrome.org.uk/contact/contact.html.

Asociación Argentina de Síndrome de Williams (aAsW)

The aAsW is a non profit organization dedicated to support people affected by the syndrome and their families.
As far as we know, this association is the first in Latin America, and it has been recognized by the government of Buenos Aires province under the register number 2233 e/t, as a public welfare entity.

Williams Syndrome Support Group of Victoria

Williams Syndrome Association of South Australia, Inc.

Williams Syndrome (IHC) Association of New South Wales

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Williams Syndrome Association of Belgium

Our Association is working towards the following aims :

• to promote the exchange of information relating to the Williams Syndrome
• to organize meetings between parents and professionals faced with this handicap
• to defend children's interests with regards to the syndrome and its specificities
• to supply the documentation centre with the literature about medical discoveries and current researches
• to collaborate with medical and pedagogical research teams
• to participate in conferences and study days concerning the syndrome
• to get in touch with similar associations located in other countries

vzw Williams-Beuren syndroom

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.The Canadian Association for Williams Syndrome (CAWS)

Other Provincial Director Addresses are listed on the CAWS home page at http://www.caws-can.org

• The association evolved from a parent support group in Vancouver, B.C. in 1984. It exists to provide support and assistance to families with a child affected by Williams Syndrome, a network and "family" for adults with Williams syndrome and to actively support research into educational, behavioural, social and medical aspects of the syndrome. The association's other goals are to locate those families with an individual with Ws who are unaware of the association and to become a visible group in the medical, scientific, educational and professional communities in order to facilitate referrals for these newly diagnosed individuals. These combined goals will improve methods of social integration and education of individuals with Ws.

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French Federation of Williams syndrome

VIGERIE Patrick
Président Williams-France
04 73 87 25 55

Fédération Française du syndrome de Williams
8 rue du Faubourg Poissonnière
75010 PARIS
contact-france@williams-france.org

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Williams-France/EST (France)

Contact : jean-pierre.massel@wanadoo.fr
Our association was born in January 1998 and cover the north-east of
France. We are now 6 regional association in France. We organise annual
parents meetings and help parents to enter in relation with other families
to share experience about education, healthcare... We have currently 22
representatives of WS children as members.

Regional Associations in France:

• Le Syndrome de Williams et Beuren

• ASW Ile de France (Paris and suburb)

• ASW Normandie

• ASW Sud-Est (covering Lyon-Tolouse-Nice)

• ASWB du Rhone-Alpes (in French)

• Association Autour des Williams (in French)
  www.bloc-note.org
  Email : benveniste.pascal@eurofactor-network.com

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Bundesverband William-Beuren Syndrom (Germany)

Regionalgruppe Bayern-Süd im Williams-Beuren-Syndrom Bundesverband

Homepage: http://www.w-b-s.de

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Magyar Williams Szindróma Társaság (Hungary)

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Williams Syndrome Association of Ireland (WSAI)

The Association provides information and support to families with a WS member, and tries to promote awareness of WS amongst the medical profession in Ireland. There are currently about 40 member families.

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Williams Syndrome of Israel

The Association was founded in 1994 and presently supports approximately 30 families. An annual convention is one of its main activities.

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Associazione Italiana Sindrome di Williams ASW (Italy)

• The Associazione Sindrome Williams (ASW) italiana is a national volunteer organization devoted exclusively to improving the lives of individuals with Williams Syndrome. It is born in Rome in July 1996. The address is: c/o Ospedale "Bambin Gesy" ROME - ITALY Telephone: 06/68592227. E-mail: aisw.rm@mclink.it It exists to provide support and assistance to the families with a child affected by W.S., a network and family for adults with W.S. and to actively support research into educational, behavioural, social and medical aspects of the syndrome.

(Thanks to Palummo Alberto (palummo@a3800.aravio.finmeccanica.it) of Alfa Romeo Avio S.A.p.A. for providing this information).

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Williams Syndrome Association of Japan (Japan)

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Williams Syndrome Association of New Zealand

Contact:

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Norsk Forening for WS (Norway)

Email:lisen.mohr@frambu.no

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Williams Syndrome Association of South Africa

Williams Syndrome Association of South Africa
PO Box 19113
TECOMA
5214
EAST LONDON
SOUTH AFRICA

Tel. 084 574 2926 / 043 726 1435
Email: ngnoord@net4u.co.za

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Asociación Sindrome Williams de España (Spain)

A.S.W.E.
Asociación Sindrome Williams de España

Contact: Rosa González (President)
C/ Mayo 37B
28022 Madrid
Phone: +34 91 413 6227

Fax: +34 91 510 2261
Email: sindromewilliams@gmail.com

Website: www.sindromewilliams.org

Other contacts in Spain:

Soria

C/ Sagunto, 14 - 4º B
C.P. 42001 Soria
Telephone: 975 22 21 67
Fax: 975 22 59 29
President: Marina Parra

Valencia

"ASOCIACION VALENCIANA SÍNDROME DE WILLIAMS"
Plaza Alquería Nova, 18, 49ª
46014 Valencia-Spain
President: Tomás Monzó González
Tel: +(34) 963-833-547
E-mail: avsw@wanadoo.es

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Williams Syndrome of Sweden (Sweden)

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Williams Syndrome Foundation, LTD (U.K.)

Enquiries from the United Kingdom of Great Britain and Northern Ireland should be made to:

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Danish Association for Williams Syndrome

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Williams Syndrome Association of Finland

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Williams Syndrome Association of Romania

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Williams Syndrome Association of Russia

Web Site: http://www.williamsjon.okis.ru/

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