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Williams Syndrome:Related Links
If you wish to recommend a link, please send the title of the site and the address (URL) (e.g. www.newsites.com) to williamssyndrome@insightbb.com or fax at (502) 810-6544. Index to Links
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 | Williams Syndrome Support Groups |
| Family WS Sites |
| Medical and Genetics |
| WS Researchers |
| Music Therapy |
| Disability Links |
| Meghan Sings! -- Meghan Finn's web site. (Order her new CD or schedule Meghan and her Mom, Liz Costello, for your next fundraising event.) |
| ~ Trent William Johnson ~ Memorial Web Site |
| The Moylan Family Web Page - http://homepage.eircom.net/~moylanfamily |
| Rachel Rowe's Personal Home Page - http://home.san.rr.com/krowe/ |
| WILLIAMS-FRANCE/EST-
http://perso.wanadoo.fr/syndrome_de_williams Jean-Pierre & Marielle Massel and daughter, Meghan email: jean-pierre.massel@wanadoo.fr |
| Horst Romm's Williams-Beuren
Syndrome Home Page -
http://home.t-online.de/home/horst.romm/homepage.htm email: Horst.Romm@t-online.de |
| The
Sanvito Family Williams Syndrome Site (in Italian)
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http://www.wsfs.it
email: klsanvit@tin.it |
|
A William's Mind Traveler -- Trey Johnson's Web Site
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| Vickie Mendoza's Williams Syndrome Page for her daughter, Mary |
| Sereena Celeste Beech's Williams Syndrome Site |
| Tyler Joseph's Williams Syndrome-PDD Page |
| Penny Perez's Blog chronicling life with her Williams Syndrome son, Keith Alan - www.PennyPerez.blogspot.com |
| American Academy of Pediatrics - Policy Statement for Williams Syndrome |
| Genetics & Cardiovascular Summary of WS |
| Felix W. Frueh's Genetics home page |
| GeneClinics - "GeneClinics" Medical Genetics Knowledge Base |
| Healthfinder - healthfinder™ is a gateway consumer health information web site from the United States government. |
| The Hyperacusis Network |
| Rare Genetic Diseases in Children |
| American Music Therapy Association - AMTA was founded in 1998, its purpose is the progressive development of the therapeutic use of music in rehabilitation, special education, and community settings. |
| Coast Music Therapy - Music therapy is a professional health discipline that uses music as a therapeutic stimulus to achieve non-musical treatment goals. Research documents that many children with special needs exhibit a high level of preference for music and show processing capabilities for musical stimuli that support deficits in related non-music areas. In this way, music can be used as a motivator and alternate learning avenue for select skills that may be more difficult for an individual to achieve using typical non-music instructional approaches. Music-based approaches used by music therapists include singing, rhythm activities, movement, and instrument playing designed to target developmental or educational goals. Services include direct therapy or consultation. Visit www.coastmusictherapy.com for more information. |
| Rocky Mountain Therapy Connections - We are a music therapy agency based in Denver, Colorado. Our therapists work with children and adults with a variety of disabilites (including William's syndrome). |
| Association of Retarded Citizens (Arc) - Excellent inclusive Home Page |
| Best Buddies International, Inc. - Best Buddies is a nonprofit organization dedicated to enhancing the lives of people with mental retardation by providing opportunities for socialization and employment. |
| Disability information |
| Exceptional Parent Library - "Information That Matters from People Who Care" in any specific special need area |
| Exceptional Parent Magazine - Exceptional Parent Magazine's online resource. Continuing 30 award winning years of providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities and the professionals who work with them. |
| Links to Disability Resources |
| Listing of Medicaid, MR/DD Waiver & Other Assistance Programs |
| National Academy for Child Development |
| National Center to Improve Practice (NCIP) - promotes the effective use of technology to enhance educational outcomes for students with sensory, cognitive, physical and social/emotional disabilities. |
| Savant Syndrome Web Site |
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Please send mail to williamssyndrome@insightbb.com with questions or comments about this web site.For additional information about Williams syndrome, please send an e-mail to hlenhoff@uci.edu.For contact with other Williams syndrome families --In the USA: please send e-mail to info@williams-syndrome.orgOutside the USA:
please visit our
International Williams Syndrome Support Groups page for
contact information.
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