The Williams Syndrome Comprehensive Web Site

 

Home of the Williams Syndrome Foundation

 
















Brady was born 10/13/05. He weighed 7 lbs. 7 oz and measured 19 inches. He was born via scheduled Cesarean section. He was clinically diagnosed with WS when he the FISH test.

Here's the clinical part: at birth, the doctors detected a heart murmur. It turned out he had two VSDs --they are so tiny and so common, they will more than likely close on their own. He also has Pulmonary Stenosis and Supravalvular Aortic Stenosis. When he was two months old he had surgery for an inguinal bilateral hernia. Since then he has also been diagnosed with radioulnar synostosis (two bones in the forearm are fused together), strabismus (he will wear glasses to help align his eyes through childhood), and feeding problems. He is taking Prevacid for silent reflux. He has occupational therapy, physical therapy and speech therapy all for developmental delays. He didn't smile until he was 14 months old, and only does sporadically, although he is very aware of his surroundings and alert.

Here's the reality part: Brady is adorable and everyone falls in love with him wherever we go. He constantly watches his 8-year-old brother and is always checking everything out. He has touched our lives in so many ways, as well as everyone he meets. He will be a big jokester, I can tell, because he acts asleep for his therapists and as soon as they stop working him he opens his eyes and hangs out again - one therapist calls it "playing possum"! His personality is starting to really shine through and I am excited to see him start to blossom. He is indeed the light in our lives.