Elias is now 14 months old. This picture is him on Halloween. He was a little monkey. He is still doing very well.

The last time we saw the cardiologist we found out that we can just get checked yearly now. That was great news as we had been going every 3 months, but his stenosis, so far, is not progressing very quickly. He has had a problem with ear infections and reflux. The doc started him with Zantac, but after a month or so, bumped him up to Prevacid and that seems to be working very well. Not much vomiting now. And he is such a good eater. He will eat just about anything you put in front of him, which I understand is atypical of WS kids. With only 4 teeth, some things are still off limits, but he sure tries.

He receives OT weekly for 45 min and ST weekly for 30 min. The only word he will say is “no”. He has said mama, but stopped saying it quite some time ago. He also has a teacher that comes every week for up to 60 min. All of these are through EI, so we are able to do them in our home.

Anyone who wishes to contact me can do so at maggieg@netzero.com anytime. I would love to hear about your little blessing, and brag about mine.