Huge greetings from Russia to our friends!

I correspond with parents of children with SW (280 - 300 person from the different countries and continents). It is very interesting, but very complex - necessary to all to translate the letter on other language, and my electronic translator sometimes translates phrases well, and it is sometimes bad. Therefore in advance I ask a pardon if the letter is badly translated.

To me 37 years, Kira 31 years (my wife), Gleb 9 (11,12,1998) Gleb was born in time, but to the wife did section as at a fruit lack of oxygen (he/she is the first child) .Growth 48 sm was, weight 2700 (small) .? him at a birth at once have defined a heart disease (as by the way at you - usually at this syndrome at children any problems with heart?). We have bypassed all central centers and hospitals with this problem and registered in ??????????? the Cardiological Center (there weight of professors and everyone put the diagnosis and operation to do were not solved. But to us simply CARRY the main children's cardiologist of Moscow has suggested to perform operation in the republic of South Africa (in clinic of the professor. Barnard). He/she is the well-known person - Nobel prize winner (the first has made change of artificial heart)-р him huge world-wide ???????? clinic in Capetown. There do one of the best operations on heart, children's. Once a year (the program) they take any child from them from any the country and perform operation here in 2002 on turn there was Russia and to us have suggested to go because someone has refused. We a little having thought agree - ???-??? have understood that at us in the country we are necessary for nobody with. And here this grandfather (the professor to Barnard-it already was years 75) has arrived for us in Moscow-has taken mine (the wife and the child and they have departed to Southern Africa. Have met them there perfectly, showed on the TV and wrote almost in all newspapers (at us many newspapers with clauses about Gleb).. In streets (after operation when they walked to them simple people approached and all congratulated on successful operation. The wife has got acquainted with family from Namibia, to them performed operation to the child (they Dutchs but live in Namibia). To it was 0,5 month-have made also perfectly-we now with them we are called back. Having arrived in Moscow we from news have learned that professor Barnard the die-wife with the grandmother 2 days cry-but we shall remember this person always-it has given Gleby the second life as against our doctors. Now at Gleb with heart everything is all right. We sent blood for examination in Austria-and to us have sent results and have confirmed that at us Williams's this syndrome (this rather rare disease) and anybody in a sort did not have problems and in Russia to us it put-only leaning on appearance of the child. Growth Gleb 140 (rather high) - weight 24.5 (Thin ) eats enough ???? bad-fruit in general any not is-very much loves all dairy and black bread eats itself (rather accurately) itself coordination of movement puts on and undresses is rather weak. Speaks (only words-offers practically much does not make) well knows colors and is able to consider up to 1000, very much loves music and cartoon films. Very tender, indulged (ours all allow-not abused) and artfully-now is begun to abuse on the sly if does not listen. Necessarily write, and come on a visit better Excuse work I shall be released still many-as shall communicate And it again my miracle. Once again excuse for English. Huge greetings from Moscow. Necessarily write-we very much we wait. Very much all is interesting to us. Write - we shall correspond, and to share our victories above Sindrom Williamsa.

Our embraces and kisses for all your .

Here my e-mail - Sergey@buro.ru - we will communicate with the great pleasure with all who to us will write.

Sergey, Kira, Glebby