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Home of the Williams Syndrome Foundation
Lane, 9 months, was diagnosed with WS one month ago. Our family
practitioner detected a slight heart murmur, and referred her to a
cardiologist who mentioned Williams Syndrome.
We had the FISH Test done, and the results came back with a positive diagnosis. We have had all the physical base tests completed and so far, Lane is physically okay except for the heart murmur, which was aortic ventricular stenosis. She will not need surgery. She is at a normal height and weight gain for her age.
Developmentally, she seems to be a little slow; she is sitting up, starting to do the movements for crawling, but we're waiting for that full-belly laugh.
She loves to eat, and eats everything (from meatloaf to pizza). She is still breastfeeding but sleeps through the night (7 to 5).
Like other WS kids, she is so happy and "smiley." Once she started smiling (at 4 months), she hasn't stopped since.
The diagnosis is still new to us, and we are going through the different emotional feelings of grieving to feeling completely overwhelmed by this new direction our lives have taken, but on living day-to-day, Lane is our baby, our pride and joy, and we enjoy watching her interact with the new things and people she encounters in her life.
We had the FISH Test done, and the results came back with a positive diagnosis. We have had all the physical base tests completed and so far, Lane is physically okay except for the heart murmur, which was aortic ventricular stenosis. She will not need surgery. She is at a normal height and weight gain for her age.
Developmentally, she seems to be a little slow; she is sitting up, starting to do the movements for crawling, but we're waiting for that full-belly laugh.
She loves to eat, and eats everything (from meatloaf to pizza). She is still breastfeeding but sleeps through the night (7 to 5).
Like other WS kids, she is so happy and "smiley." Once she started smiling (at 4 months), she hasn't stopped since.
The diagnosis is still new to us, and we are going through the different emotional feelings of grieving to feeling completely overwhelmed by this new direction our lives have taken, but on living day-to-day, Lane is our baby, our pride and joy, and we enjoy watching her interact with the new things and people she encounters in her life.
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