This is Molly at her 6th birthday party. She lives in Nottingham, England.

Molly was diagnosed with the genotype for cystic fibrosis at 11 weeks old, although it has not caused her too many health problems. Her WS was not diagnosed until she was 4 1/2 years old. We had noticed some unusual behaviours - sensitivity to noise, poor motor control, a pronounced squint that was corrected with surgery, heart murmur, anxiety - and of course, a very friendly, charming and outgoing personality.

Molly has 2 older sisters who help to look after her at school and, like everyone, they love her very much. She is making good progress at school but finds many things difficult. Molly loves swimming, bouncing on her trampoline, playing with her pets and princesses - she would like to be a princess when she grows up!

Like all parents of WS children, we have had some difficult times, but Molly is a very special little girl who brings so much happiness to everyone who knows her.

Please feel free to contact us at sarahheery@hotmail.com.